Fundamental rights, democracy and the Human Genome Project: bioethical and biopolitics

Authors

  • Jenífer Naves Soares
  • Rafael Lazzarotto Simioni

Abstract

The Human Genome Project constitutes an important contemporary health technology, but it is also a political and economical structure which of production and reproduction of a dominant concept of health. In this perspective, this research aims to discuss the question of the guarantee of autonomy and freedom of choice of the physicalbiological
patterns of the future generations, in a society in which those patterns are historically reproduced by power relations. For this reason, a methodology of analysis of the Human Genome Project is used in the context of the tension between constitutionalism and democracy, in order to establish an approximation between the contributions of Bioethics, Biolaw and Biopolitics, in the context of a critical perspective of our society. As a result we propose a reflection about the institutionalisation of public hearings articulated from a model of deliberative democracy.

Keywords:

Human Genome Project. Bioethics. Biolaw. Biopolitics. Deliberative democracy.

Author Biographies

Jenífer Naves Soares

Mestranda do Programa de Pós-Graduação em Bioética da Univás, Especialista em Bioética pela UFLA, Especialista em Direito Público pela UCAM, Bacharel em Direito pela FADIVA, Tutora EAD da Univás Virtual em Pouso Alegre, Minas Gerais, Brasil, Advogada.

Rafael Lazzarotto Simioni

Pós-Doutor em Teoria e Filosofia do Direito pela Universidade de Coimbra, Doutor em Direito pela Unisinos, Mestre em Direito pela UCS, Professor do PPGD/FDSM e do Programa de Mestrado em Bioética da Univás. Pesquisador-Líder do Grupo de Pesquisa Margens do Direito (PPGD/FDSM). Pouso Alegre, Minas Gerais, Brasil.
Vol. 26 No. 4 (2018): Rev. bioét. (Impr.). 2018; 26 (4)

Published:

2018-12-19

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How to Cite

1.
Soares JN, Simioni RL. Fundamental rights, democracy and the Human Genome Project: bioethical and biopolitics. Rev. bioét.(Impr.). [Internet]. 2018 Dec. 19 [cited 2024 Nov. 21];26(4). Available from: https://revistabioetica.cfm.org.br./revista_bioetica/article/view/1680